Cystitis: first guideline for the therapy of interstitial cystitis
Especially in the cold season, many people suffer from a urinary tract infection. Interstitial cystitis / cystitis (IC) is a special form of cystitis. The predominantly female patients usually have stinging abdominal pain and have to go to the toilet up to 60 times a day. The diagnosis often takes years. Now the first guideline for diagnosis and therapy of the disease has been drawn up.
Girls and women in particular suffer from cystitis
Although this can also happen in summer, the chances of developing bladder infection are significantly higher in the cold winter months. Most often, girls and women are affected by inflammation of the urinary tract, which is often accompanied by problems with urination. But men can also get it and then feel a constant urge to urinate. Interstitial cystitis / cystitis (IC) is a special form of cystitis. A first guideline for the diagnosis and therapy of the incurable disease has now been drawn up, which should contribute to better care for those affected.
Up to 60 toilet visits per day
Stinging abdominal pain and urge to urinate with up to 60 toilets during the day and night: The predominantly female patients with interstitial cystitis (IC) are under enormous suffering; the disease often leads to social isolation and disability.
In addition, the clinical picture is still relatively unknown and the chronic inflammation of the bladder wall is still difficult to diagnose.
On average, it takes nine years to make a diagnosis; Half of the patients need more than 20 visits to the doctor before their excruciating suffering gets a name.
The German Society for Urology eV (DGU) and the Association for Interstitial Cystitis, the ICA-Germany eV (ICA) have now drawn up the first German guideline on “Diagnostics and Therapy of Interstitial Cystitis (IC / BPS)” and thus a decisive step for better care for those affected.
Diagnostics and therapy of interstitial cystitis
After many years of a doctor's odyssey, the diagnosis of “interstitial cystitis” is finally made by 99 percent of urologists.
"With the interdisciplinary guideline, we now have the opportunity to provide information across specialist areas, to sharpen the general sensitivity of doctors for IC and to optimize the quality of care," said DGU press spokesman Prof. Dr. Christian Wülfing in a message.
The guideline is primarily intended for doctors and practitioners specializing in urology, gynecology, general medicine, pain therapy and physiotherapy.
"After decades of efforts to set standards for diagnosis and therapy of the rare disease, another key milestone has been reached with a guideline of quality S2k", says the Federal President of the ICA Germany, Bärbel Mündner-Hensen.
Illness is not curable
Interstitial cystitis is not curable. Multimodal therapies, i.a. drug therapies, bladder installations and pain therapy can only prevent the disease from progressing and alleviate symptoms.
The causes of IC, which are associated with concomitant diseases such as muscle and joint pain, migraines, depressive moods, allergies, colon and stomach problems, are not well known.
The disease is described as an immune and barrier defect in the tissue of the urinary tract, in particular the protective so-called GAG layer of the urinary bladder, which exposes the bladder wall to damaging constituents of the urine and can trigger an ongoing inflammatory process.
It is estimated that 18 out of 100,000 women in Europe are affected, and the number of unreported cases is very high. "The successful implementation of the guideline can counteract this," said DGU press spokesman Prof. Wülfing.
The need for research remains high. "In order to better research therapy options, the next step is to have a scientific consensus on the exact differentiation of the various forms of the disease, which will allow more precise patient selection in future studies," says Mündner-Hensen. (ad)