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Rare skin disease: Extreme growths return to the "Baummann"


After successful operations: "Baummann" suffers severe relapse

Abul Bajandar from Bangladesh suffers from an extremely rare skin disease that led to bark-like growths on his hands and feet. Doctors were able to free him of the five kilogram growths in numerous operations. But now the patient, who became known as "Baummann", has suffered a severe relapse.

"Baummann" is worse again

Bangladeshi Abul Bajandar, who has a rare skin disease, has had a severe relapse. Earlier last year it was reported that there was hope that the patient, who had become known as "Baummann", would soon be released from the clinic after numerous operations. But nothing came of it. Now the 28-year-old has suffered a severe setback.

Extremely rare illness

According to the definition valid in Europe, a disease is considered rare if fewer than five out of 10,000 people are affected. Overall, so-called rare diseases are not that rare. Around four million people are affected in Germany alone.

A disease that is in fact extremely rare is called epidermodysplasia verruciformis (or Lewandowsky-Lutz dysplasia or Lutz-Lewandowsky epidermodysplasia verruciformis). According to health experts, it only occurs in a handful of people worldwide.

Abul Bajandar is one of the few patients who suffers from it. His hands and feet began to change over ten years ago. Because of the bark-like growths, the now 28-year-old is also called the "tree man".

Around a year ago, after numerous operations, the patient was thought to be "healed". But the hopes have not been fulfilled. The disease is back.

Hands like tree roots

Last year, doctors in Bangladesh were able to free a girl who suffered from the so-called “Baummann syndrome” from its growths.

Weeks earlier, doctors at the Dhaka University Hospital (capital of Bangladesh) had managed to remove the bark-like growths on the hands and feet of Abul Bajandar, who also suffers from this rare skin disease.

The doctors freed the former rickshaw driver at that time in a complex but free treatment of a total of five kilograms of superfluous tissue. It took 24 operations.

Now, in another operation, warts that were growing on his hands should be removed. And it may not stop there:

"I'm afraid of further operations," the family man told AFP. "I don't think my hands and feet will be okay."

There is currently no definitive cure

The treating doctors also admitted that they were happy too early: “We thought we had made it. But obviously we need more time for this patient, ”said surgeon Samanta Lal Sen.

The extremely rare, genetically caused skin disease Epidermodysplasia verruciformis, which the patient suffers from, is associated with an increased susceptibility to human papillomavirus (HPV).

According to a report from the Live Science portal, there is currently no definitive cure for epidermodysplasia verruciformis.

In addition to surgery, the treatment can also include medications that are sometimes used to treat skin conditions.

However, although there are some treatment options, "none of them appear to be curative, and the lesions usually recur after treatment is stopped."

Hope has not come true

Abul Bajandar has lived in a small room in the hospital in Dhaka with his wife and four-year-old daughter.

The family intended to return to their home village after the wounds healed. But probably nothing will come of it for the time being.

"I was so worried about raising my daughter. I hope the curse will not return, ”the patient said after the surgery last year. But the hope has apparently not been fulfilled. (ad)

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